Association of Citizens
The association “Life” was founded in 2010 by two families, Mirosavljević and Čović, whose children Zoja and Aleksa suffered from a very rare neurodegenerative and deadly Batten disease. Both Zoya and Aleksa lost their battle against this vicious disease.
Since 2010, the association has been very active in raising awareness about the problems of rare diseases, providing therapy and medical equipment, as well as improving the position in society of both those suffering from rare diseases and their families.
The biggest achievement of the association is the initiative to adopt the Law on Prevention and Diagnosis of Genetic Diseases, Genetically Conditioned Anomalies and Rare Diseases, the so-called Zoja’s Law. This law is named after the girl Zoja Mirosavljević, who died of Batten’s disease in 2013 at the age of nine.
Zoja’s law had great support from citizens, the Assembly of the Republic of Serbia, the media and the public. On January 23, 2015, the law was unanimously adopted by the Assembly of the Republic of Serbia.