Challenges faced by a family in which a child suffers from a rare disease |  Teodora Todorovic, pedagogue

After learning that the child suffers from a rare disease, the life of the family changes turbulently. In this podcast, the emphasis is primarily on those processes that the child goes through and on the ways in which family members can make his (her) life easier during the treatment period.

The author of this podcast is Teodora Todorović, pedagogue and psychotherapist from the National Association of Parents of Children with Cancer “Nurdor”.

The database of rare diseases is a regional project aimed at shortening the time to diagnosis, networking health professionals, patients and patient associations, while providing broad support to patients suffering from rare diseases and their families.

Siblings of a child diagnosed with a rare disease: strengths and challenges| Tamara Maksimović – Vujić

What problems do siblings of a sick child face, what emotions do they experience and how can parents and experts help them with these challenges?

Watch the podcast that deals with these topics, and the author of which is psychologist and play therapy practitioner Tamara Maksimović – Vujić from the center for personal development and education PAR.

The database of rare diseases is a regional project aimed at shortening the time to diagnosis, networking health professionals, patients and patient associations, while providing broad support to patients suffering from rare diseases and their families.

Our child has a rare disease: How to save marriage in new life circumstances | Ana Jokić, psychologist

The topic of the podcast is primarily intended for parents who are currently going through a difficult period in which their child is fighting a rare disease. We will talk about how a child’s illness affects the relationship between parents or partners, but also why it is extremely important to continuously improve the quality of family relationships, especially in such unforeseen and unwanted life circumstances.

The author of the podcast is Ana Jokić, psychologist of the center for personal development and education PAR.

The database of rare diseases is a regional project aimed at shortening the time to diagnosis, networking health professionals, patients and patient associations, while providing broad support to patients suffering from rare diseases and their families.

Coping with a diagnosis of a rare disease | Andrea Mezei Rokvić – psychologist from the Temenos Psychological Center

Dealing with the diagnosis of a rare disease is an extremely powerful and complex moment in the life of every patient. We created the podcast to clarify the emotional processes that those facing the diagnosis go through and help them. The author of the podcast is Andrea Mezei Rokvić – a psychologist from the Temenos Psychological Center.

The database of rare diseases is a regional project aimed at shortening the time to diagnosis, networking health professionals, patients and patient associations, while providing broad support to patients suffering from rare diseases and their families.